Founder, Healthcare Advocate
Swapna Speaks
Huntsville, AL, Alabama
Swapna Kakani is a patient healthcare advocate and researcher. She has lived with a central vascular access device for 29 of her 33 years due to Short Bowel Syndrome and other types of vascular access during multiple hospitalizations at 8 different hospitals across the country. Swapna through her platform, Swapna Speaks, has spoken across the world to several healthcare companies and associations motivating their members to make a difference within themselves, their organizations, and in the healthcare system, to create and sustain valuable patient engagement at every point of access. Swapna also does healthcare advocacy and policy work for the Short Bowel Syndrome/Intestinal Failure and broader rare disease communities in her home state of Alabama and nationally. In 2021, she co-founded the gutsy perspective, a research initiative driven by members of the short bowel syndrome (SBS) community to ensure the patient and family narrative is represented. Swapna, originally from Huntsville, AL, received her Bachelor's in Psychology and Master’s in Public Health from the University of Alabama at Birmingham (UAB).
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(J1) General Session: From Hospital to Homecare: Bridging the Gap in the Patient Experience
Monday, October 16, 2023
8:45 AM – 9:45 AM PT